OBTAINABLE RESOURCES

Genomics Across The Continuum Of Precision Health Care

The National Academies Roundtable on Genomics and Precision Health, in collaboration with the National Cancer Policy Forum, hosted a public workshop that examined how genomic data are used in health care, outside of the traditional settings for clinical genetics. The workshop identified opportunities for advancement of precision health care delivery. The event also explored how patients, clinicians, and payers assess and act upon the risks and benefits of genomic screening and diagnostic testing. Discussions focused on strategies to ensure that genomic applications are responsibly and equitably adopted to benefit populations as well as individuals over time. This Proceedings of a Workshop summarizes content from the event. They can be obtained at Realizing the Potential of Genomics across the Continuum of Precision Health Care: Proceedings of a Workshop |The National Academies Press.

 Clinical Ethics In Revised Hospital Accreditation Standards

An article published on March 24, 2023 by The Hastings Center indicates that it is remarkable that in the wake of Covid-19 and all the ethical challenges and health care inequities associated with the pandemic, The Joint Commission, which accredits U.S. hospitals, eliminated the sole element of performance that governed clinical ethics services: “The hospital follows a process that allows staff, patients, and families to address the ethical issues or issues prone to conflict.”  The general argument seemed motivated by the assumption that ethics was in the air and that these norms have been well incorporated into the daily life of the hospital. This performance standard has been replaced with language asserting the critical importance of equity, a welcome endorsement that s applauded, but why does one need to be exchanged for the other, in the service of the good? An opinion is offered that removal of the clinical ethics element both impedes achieving the objective of equity and undercuts progress toward fostering clinical and organizational ethical practice within health care institutions. The article can be obtained at Where is Clinical Ethics in the Revised Hospital Accreditation Standards? - The Hastings Center.